This group is composed of parents of and individuals with Spina Bifida who are interested in improving the lives of people with Spina Bifida through research as well as Healthcare professionals who are interested in the improvement of care for people living with Spina Bifida and experienced in research methods.

The Research Advisory Council helps provide resources and guidance to support our research efforts. Council members contribute to our mission by providing their diverse knowledge; their connections to local, national, and/or international resources, colleagues, or peers; or provide other forms of needed assistance.

Current Members

Advisory Council members should be:

• Parents of and individuals with Spina Bifida who are interested in improving the lives of people with Spina Bifida through research;

• health care professionals with experience in research methods;
• able to provide feedback in a respectful manner;
• open to a diversity of ideas;
• knowledgeable about research funding sources and willing to identify them; and
• willing to educate new researchers about the research needs in Spina Bifida.

Interested in joining the RAC?

Applications for the 2021-2022 term will be available soon. If you have questions, please email the Director of Research & Services, Judy Thibadeau.